Home at last

At last I came home on Friday evening. Was feeling much better in the morning and really ready to go home. The Drs came and saw me following their meeting with colleagues at Papworth but decided they didn't want to do anything until I have had my next scheduled scan on 18th February. They decided I was too comprimised at the moment to be able to cope with more treatment and want me to have a rest and be as well as possible before they start again.

Having been kicked out of bed at 2.30 I then had to wait at Addenbrookes pharmacy until 6.30 to be allowed to take my controlled drugs after having them signed off by a nurse. Susan picked me up and we made our way home. I felt pure elation to get out of the hospital but really tired. We got home but obviously the days events had taken their toll on my weak frame and after a shaking fit and a good old blast on my oxygen (any takers are welcome to Knettishall Heath Oxygen Bar for pure oxygen on tap 24/7) I went to bed exhausted but happy to be in my own bed at last.

I woke up to the beautiful sunshine on Saturday morning all on my own with no nurse shaking me or crazy fellow patients shouting they had a bottle stuck up their bottom!! Just the peacefulness of the countryside and the birds and the snowdrops. It was a good weekend to be released. The perfect day started with the perfect omlete. Whilst eating the perfect omlete 2 cup final tickets were delivered courtesy of my Bradnam Joinery collegues to whom I am eternally grateful. We had a wander around our garden in the warm sunshine and then I drove the short distance to the Heath and sat with Susan, her mum and Ledley and had a short picnic. I drove back as the sun was setting and settled down for the evening.

Unfortunately the shaking of the previous night returned whilst I had visitors which cut the evening short while I hooked up to my oxygen and scared my vistors 5 year old half to death. I embarrased myself further by talking about how my trainers were really nice and that I'd only worn them once!! Confusing this poor child even further he asked if he could catch what I had!! It seems oxygen, the cold and my morphine make a recipe for disaster on the talking bollocks front!

However, I went to bed early having had a wonderful first day out. Sunday saw an equally beautiful day warm and sunny again. I didn't feel quite as strong as the day before and had to put visitors off. Susan had to go to Gorleston Crematorium with forms and I decided a ride out would eliviate boredom without having to think, speak, drive or stay awake. It was a lovely day for a drive and had a sleep on the way home. Upon our return a couple of friends came to visit but I couldn't stay awake and fell asleep while they were here. Never mind they understand how hard this is for me.

Susan and I went to her mums for tea, after which I had another 2 hour power nap and awoke in time to go home. The shakes started again but I was ready for them this time with my trusty fleece blanket that my brother Mick and sister in law gave me for our Wedding. What a god send that blanket has been. Good choice! I took all my drugs including the injection in my stomach for the clot and went to bed knackered again.

What an exhausting existance I have. In summary I have been off work for 3 months, other than the illness, boredom is the biggest factor. It is important to motivate myself to do things but the lack of energy and strength make life a struggle. The overwhelming support from my family and friends and my wife keep me going beyond belief. It's nice to know people are reading this blog thank you to everybody.